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FOR IMMEDIATE RELEASE |
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State
Rep. Kenyatta Johnson
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Johnson measure to evaluate state's sickle cell services approved by committee
HARRISBURG, Nov. 18 – State Rep. Kenyatta Johnson, D-Phila., said the House Health and Human Services Committee on Tuesday unanimously approved a measure he introduced that would call on the state Department of Health to assess and inventory the services it provides for people afflicted with sickle cell disease, also known as sickle cell anemia.
The resolution (H.R. 285) would direct the state Health Department to conduct a study on its Sickle Cell Disease Program. The program currently offers medical and psychological services to patients at service sites throughout the state.
"The program provides valuable services to people who suffer from sickle cell disease; however, its primary sites are only in Pittsburgh and Philadelphia, making accessibility for residents of central Pennsylvania and the northern and southern tiers of the state difficult," Johnson said. "The proposed study would outline the services currently available and detail additional services that may be needed."
Sickle cell disease is a serious blood disorder that causes acute pain, severe anemia, infections and vascular blockages that can lead to widespread organ damage and death. It is a genetic disease, affecting some 2 million Americans, most often in African-Americans and Hispanics. Until the past few decades, most people with sickle cell disease did not live beyond young adulthood, but advances in treatment have improved and lengthened the lives of patients who have access to good medical care.
The measure awaits consideration by the full House.