Caregivers without Coverage: A Looming Crisis in Pennsylvania
testimony submitted by the
Paraprofessional Healthcare Institute
to the
Democratic Policy Committee
March 29, 2007
My name is Tracy Lawless and I represent the Paraprofessional Healthcare Institute (PHI). PHI works to improve the lives of people who need home care and nursing home care and the lives of the workers who provide that care. Our goal is to ensure caring, stable relationships between consumers and workers so that both may live with dignity, respect and independence. We advocate for numerous strategies that will ensure quality care through quality jobs, with access to quality, affordable health care on the top of the list.
We appreciate the opportunity to comment on the importance that health insurance coverage has on direct-care workers—the hands-on caregivers who work in the Commonwealth's 3400-plus home care agencies and residential long-term care facilities.
PHI is a not-for-profit organization that works to strengthen the direct-care workforce within Pennsylvania’s long-term care system. Our work is grounded in the philosophy that
quality jobs for direct-care workers will lead to quality care for long-term care consumers. PHI recently began the Health Care for Health Care Workers Initiative, with the specific goal of advocating for affordable and accessible health insurance coverage for direct-care workers in nursing homes, assisted living, and in-home settings. Over the past year, PHI has been a member of the Governor’s Office of Health Care Reform’s Health Resources and Services Administration (HRSA) State Planning Grant for the Uninsured. We have provided input on how health insurance models explored in that process would affect the direct-care workers and their employers. We recently conducted a feasibility study of long-term care employers to better understand the current availability of health insurance coverage for direct-care workers and identifying the barriers that long-term care employers face in providing coverage to their workers. We also have brought together several focus groups of small and large employers throughout Pennsylvania to discuss their ability to provide health insurance for their workers. Soon, we will be surveying employees to learn more about the worker’s perspective.SCOPE OF THE PROBLEM:
There are an estimated 130, 000 direct-care workers in Pennsylvania. Nursing assistants, home health aides, and personal care attendants provide 70 to 80 percent of the hands-on long-term care services to elders and individuals with disabilities. We know that nationally, one in four nursing home workers and more than two out of five home care workers lack health insurance coverage. Given the challenges that direct-care workers and long-term care employers face in obtaining health insurance coverage we believe these national rates of non-insurance among direct-care workers are applicable in Pennsylvania.
Direct-care workers lack insurance for two primary reasons: It is too expensive for them or it is too expensive for their employers. In Pennsylvania, home health aides and nursing home assistants earn an average of $9.00/hour. Studies show that almost half of direct-care workers live in households that are at or below the poverty line. In the instances when health insurance is available through their employer, these workers often cannot afford the average employee premium for individual or family coverage.Difficulty recruiting direct care workers is a serious workforce problem which can be linked to a lack of health insurance.53% of 759 direct care providers surveyed in Pennsylvania reported either very serious or somewhat serious recruitment problems, and 42% reported serious or somewhat serious retention problems. The same report reveals that almost half of Pennsylvania consumers reported they have had more than one paid caregiver in the past week. Recent
research also suggests that, for direct-care workers, health insurance is even more important than wages in reducing turnover, or in increasing the supply of direct-care workers and hours worked."Consider the story of Cheryl Dougan and her son, Renzo of Bethlehem, PA. At the age of 14, a cardiac arrest left him with a severe anoxic brain injury. For the last seven years, he has been completely dependent on the help of direct care workers. Cheryl pays at the higher end of the wage scale, but cannot afford health benefits for Renzo’s workers. Over the year, Renzo has had more than 40 workers come and go. His short term memory is challenged. It takes months for him to remember a worker’s name. And it takes at least a month for workers to understand his patterns of speech. For every aide that comes in Cheryl has to train them to help him eat through a straw, manage his toileting, and how to help him regain limited skills. Cheryl believes that with health care coverage, retention would increase and the quality of workers would improve.
Long-term care employers are also challenged by the high cost of health insurance coverage.
Health insurance premiums are often higher for long-term care employers because their workers are considered high-risk due to their age, gender, and high on-the-job injury rate. For many smaller long-term care employers, the high cost of health insurance makes it impossible for them to offer affordable health insurance coverage to their workers.
I am sure many of you have heard these same concerns about the cost of health insurance expressed by your constituents, and are asking why direct-care workers merit particular attention.
Most of us will need a direct-care worker to care for us or a loved one at some point in our life. Direct-care workers are the backbone of the long-term care industry. Pennsylvania’s elderly population is expected to expand during the next 25 years by more than 52 percent, but the traditional source of new caregivers, women ages 25 to 44 is projected to shrink by more than 10 percent. Given this care-gap crisis, decision makers in both the public and private sectors need to take necessary steps to attract and retain qualified, committed, direct-care workers.
EXPLORING OTHER OPTIONS:
PHI has begun exploring a method of cost-sharing of benefit packages. We are interested in learning more about how long-term care employers can offer affordable health insurance. Low income workers are more likely to use and access health insurance when cost-sharing is below 5 percent of their income. Also, while we recognize the need to keep the cost of care at manageable levels, we find that direct care workers realistically need a
solid benefit package, including prescription drugs, disease management/education services, and, given their high rate of on-the job injury, physical and occupational therapy services.It is becoming increasingly difficult for health care provider agencies to provide employees in their industry with adequate heath insurance and other benefits.
With this in mind, the Paraprofessional Healthcare Institute (PHI), the Tri-County Patriots for Independent Living (TRIPIL Services), the Service Employees International Union, and the ICA Group have partnered to conduct research to explore alternatives that might make affordable employee benefits more widely available within the home and community based service sector in the Washington, Fayette and Greene County area. This effort is part of a larger project TRIPIL is undertaking with the financial support of the Pennsylvania Department of Labor and Industry, to create a Regional Workforce Center in southwestern Pennsylvania.
Our efforts have been focused on a survey that will explore the feasibility to develop a Professional Employer Organization (PEO) that could offer affordable health insurance for the long-term care sector in Southwestern Pennsylvania. The mission of the proposed PEO will be to establish a co-employer of record for agency-employed caregivers in the region for purposes of payroll, health insurance, and other benefits. The PEO offers an increasingly common solution to the escalating cost of health insurance for small and medium sized companies.
POTENTIAL DIRECTIONS FOR PENNSYLVANIA
We believe the Governor’s Prescription for Pennsylvania is a
great step in the right direction to provide health care coverage for all
Pennsylvanians including those in the direct care workforce. We are pleased that
the plan recognizes the need for subsidies for low-income families and small
employers that employ the majority of the working uninsured in Pennsylvania.
We have learned a great deal about state reform and how subsidizing employer
coverage can address the direct care workforce from our work in Maine with the
state’s DirigoHealth reform plan since its launch in January 2006. There are
lessons here that we want to share with you that we believe are relevant for
Pennsylvania’s direct care workforce
Eligible Employers: The plan calls for coverage of workers that are employed by organizations that employ 50 people or less. This raises two possible obstacles. First, many long-term care employers hire part-time workers and may have over 50 though not 50 FTE. Second, in Pennsylvania the average home care agency employs 72 workers. Consideration should be given to raising the limit from 50 to 100 and to determine eligibility by FTEs.
Multiple Employers: Many direct care workers – particularly in home and personal care -- cannot be guaranteed full time work because a client’s health situation could change from day to day and week to week. Therefore, many piece gatherer work from several employers in order to achieve a full time work week. Consideration should be given to how responsibility for coverage would be pro-rated among home care agencies.
Affordability for Employers: Many employers are publicly funded and dependent on Medicaid revenues to provide the services and pay their workers. Medicaid reimbursement rates have not kept up with the ever-rising cost of health insurance and have forced employers to pare down benefits, increase co-pays, change eligibility rules, or drop coverage altogether. While the subsidized rate of $170 per enrollee per month is generous, for many employers this will still be prohibitive unless their rates reflect this added expenditure. Employers we spoke to in Pennsylvania focus groups conducted last month, offered health insurance to their workers but after a few paychecks, all the employees have dropped their coverage because it simply was not affordable. This raises the question about whether the employer would still get penalized if employees drop the coverage that is offered to them.
Eligibility for Workers: Many insurance plans require 75 – 100% participation of all eligible employees in order to write a policy to insure against adverse selection. Careful consideration needs to be given to which workers are considered "eligible" since many could be part-time. Encouraging employers to set the eligibility level low enough to provide access to coverage for part-timers (e.g., working 20 hours a week instead of the standards 37.5 or 40) could eliminate this problem.
Affordability for Workers: Direct care workers wages are low and subsidies for coverage are critical in order to ensure participation. Many nursing home workers are offered coverage but do not take it due to monthly out-of-pocket costs. One Schuykill County employee recently dropped coverage because it was costing her approximately $60 each month. This amount falls within the "affordable" parameters of the Governor’s proposal of $10 - $70 a month.
These are just a few of the issues that are unique to the home care and home health arena and ones that could have a significant impact on improving access to the caregiving workforce.
At the end of the day, direct care workers do this work because they care and know they are making a difference for the consumers they serve. But without health insurance, caregivers are just one major illness or accident away from financial ruin. Making sure that these workers have access to affordable health insurance coverage will help to ensure job stability and consistent care, and provide everyone – long term care consumers, family members, and workers alike – with a better future.
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Tracy L. Lawless
State Campaign Coordinator - Pennsylvania
Healthcare for Healthcare Workers Campaign
Paraprofessional Healthcare Institute
P O BOX 549
Wexford, PA 15090
724-933-6164
724-831-7171 cell
tlawless@paraprofessional.org
www.hchcw.org
www.paraprofessional.org
www.directcareclearinghouse.org