Please ensure Javascript is enabled for purposes of website accessibility Burgos bill to strengthen transparency between consumers and genetic testing companies passes House

Burgos bill to strengthen transparency between consumers and genetic testing companies passes House

Pennsylvania House Democratic Caucus    December 16, 2025 | 3:39 PM

HARRISBURG, Dec. 16 – Legislation introduced by state Rep. Danilo Burgos, D-Phila., that would create greater transparency between genetic testing companies and consumers passed the House today.

“Tens of thousands of Pennsylvanians have purchased services and submitted saliva samples to genetic data companies,” Burgos said. “However, there have been several instances where these companies have profited off consumer’s genetic data without their consent, typically by marketing and selling genetic data to third parties.”

House Bill 1530 would require express consent from customers before using consumer data and ultimately allow customers to have direct control of their genetic data through deletion requests and other privacy measures. 

Twelve states have already passed legislation to codify privacy protections for consumer genetic data.

“It’s past time we recognize the need to safeguard this sensitive information and enable consumers to take back control of how their genetic data can be used,” Burgos said.

The bill now moves to the state Senate for consideration.